
Clinical research studies involves people, but do not involve treatment with an experimental drug or testing of an experimental device. These studies may help doctors, researchers and scientists learn more about the disease, so that they may diagnose, prevent, treat or cure the disease. This type of research often does not directly benefits the participant, but the knowledge gained may help others in the future.
We are involved in a wide variety of clinical research projects at the Emory ALS Center. Participation in our clinical research projects ranges from a one-time blood donation to the most generous gift of tissue donation. Among these projects, we are studying people with ALS to gain knowledge about the genetic causes of disease in families with inherited ("familial") ALS, in addition to investigating whether there is a gentic predisposition or susceptibility to disease in patients with non-inherited ("sporadic") ALS. We are also investigating new techniques to diagnose ALS and measure disease progression.
Clinical Research Opportunities: (no experimental drug treatment):
Research Study |
Study Details |
Contact Person |
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The Validation and Discovery of ALS Biomarkers
Identify novel biomarkers in ALS |
For patients with ALS or PLS Procedures include collection of blood and spinal fluid every 4 months for up to 3 years. |
Latoya Shaw 404-727-1673
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Clinical Research in Neurology To learn more about neurological disorders |
For ALS patients and their blood relatives Procedures include donation of a blood sample and an information questionnaire |
Latoya Shaw 404-727-1673 |
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Alzheimer’s Disease Research Center Registry Longitudinal study of changes in memory |
Diagnosed with ALS and have memory problems Yearly memory evaluation by a neuropsychologist at Emory Opportunity to donate tissue after death |
Meraida Polak 404-778-3807
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Tissue Donation Consider giving the most generous gift to ALS research |
Essential to discuss and make arrangements well in advance Donate nervous system tissue Procedure performed at Emory at no cost Should not compromise funeral arrangements |
Meraida Polak 404-778-3807 |