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Clinical Research

Clinical Research

Clinical research studies involve people, but do not involve treatment with an experimental drug or testing of an experimental device. These studies may help doctors, researchers and scientists learn more about the disease, so that they may diagnose, prevent, treat or cure the disease. This type of research often does not directly benefits the participant, but the knowledge gained may help others in the future.


We are involved in a wide variety of clinical research projects at the Emory ALS Center. Participation in our clinical research projects ranges from a one-time blood donation to the most generous gift, tissue donation. Among these projects, we are studying people with ALS to gain knowledge about the genetic causes of disease in families with inherited ("familial") ALS, in addition to investigating whether there is a genetic predisposition or susceptibility to disease in patients with non-inherited ("sporadic") ALS. We are also investigating new techniques to diagnose ALS and measure disease progression.

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Current Clinical Research Opportunities: (no experimental drug treatment):

Project MinE: 

Project MinEProject MinE is a genetic research program that aims to map the full DNA profiles of at least 15,000 people with ALS and compare them with 7,500 control subjects (people without ALS or a family history of ALS). The program originated in the Netherlands and includes researchers from 15 countries, including The United Kingdom, Portugal, Ireland, Spain and Belgium. Our center is the US site and Dr. Glass is the lead investigator in the U.S. All Emory ALS patients are invited to participate by providing a blood sample for DNA, and (optionally) a small skin sample to create stem cells for further research.  We will also be looking for “controls” who want to participate in this research.

Answer ALS

AnswerALS - The largest coordinated ALS research in history with nearly two dozen research entities, 1000 patients, five clinical sites including Emory. 

See answerals.org or clinicaltrials.gov NCT02574390

Download the Answer ALS consent form HERE.

LABB-resumption of the previous long term biomarker study.  Contact Meraida Polak (404-778-3807, mpolak@emory.edu 

Cognitive Changes Associated with ALS

  • Longitudinal study of changes in behavior.
  • For patients diagnosed with ALS who might also have cognitive problems.
  • Yearly cognitive evaluation by a neuropsychologist at Emory.
  • Includes tissue donation after death.

Contact Meraida Polak at 404-778-3807 or mpolak@emory.edu

Tissue Donation

  • Consider giving the most generous gift to ALS research.
  • It is essential to discuss and make arrangements well in advance.
  • Only open to ALS Patients receiving their care at the Emory ALS Clinic
  • Should not compromise funeral arrangements.

Contact Meraida Polak at 404-778-3807 or mpolak@emory.edu


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