Clinical Research

Clinical research studies involves people, but do not involve treatment with an experimental drug or testing of an experimental device. These studies may help doctors, researchers and scientists learn more about the disease, so that they may diagnose, prevent, treat or cure the disease. This type of research often does not directly benefits the participant, but the knowledge gained may help others in the future.

We are involved in a wide variety of clinical research projects at the Emory ALS Center. Participation in our clinical research projects ranges from a one-time blood donation to the most generous gift of tissue donation. Among these projects, we are studying people with ALS to gain knowledge about the genetic causes of disease in families with inherited ("familial") ALS, in addition to investigating whether there is a gentic predisposition or susceptibility to disease in patients with non-inherited ("sporadic") ALS. We are also investigating new techniques to diagnose ALS and measure disease progression.

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Autopsy Brochure

Clinical Research Opportunities: (no experimental drug treatment):

Research Study 

Study Details

Contact Person

The Validation and Discovery of ALS Biomarkers

 

Identify novel biomarkers in ALS 

For patients with ALS or PLS

Procedures include collection of blood and spinal fluid every 4 months for up to 3 years.

 

Latoya Shaw

404-727-1673

latoya.q.shaw@emory.edu

 

Clinical Research in Neurology

 

To learn more about neurological disorders

For ALS patients and their blood relatives

Procedures include donation of a blood sample and an information questionnaire

Latoya Shaw

404-727-1673

latoya.q.shaw@emory.edu

Alzheimer’s Disease Research Center Registry

 

Longitudinal study of changes in memory

Diagnosed with ALS and have memory problems

Yearly memory evaluation by a neuropsychologist at Emory

Opportunity to donate tissue after death

Meraida Polak 

404-778-3807

mpolak@emory.edu

 

Tissue Donation

 

Consider giving the most generous gift to ALS research

 

Essential to discuss and make arrangements well in advance

Donate nervous system tissue

Procedure performed at Emory at no cost

Should not compromise funeral arrangements

Meraida Polak 

404-778-3807

mpolak@emory.edu