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Patient Resources

When you or a loved one is diagnosed with ALS, your first reaction is typically shock and fear. You may be overwhelmed and very emotional, and have many questions. You might not have ever known anyone with ALS and feel alone – but you are not alone! There is support available and it is important to engage early and seek support.  Resources available to help you through your journey with ALS are listed below and also available by item listed on the left side of this page.  

Contact us at the Emory ALS Center Office:
Phone: 404-778-3444     Fax: 404-778-3495
 

Patients can sign up for the email portal by calling 404-727-8820. Patients with speech problems, please have family call our office and leave their email address.

 

MDA Muscular Dystrophy Association (MDA) – Greater Atlanta and Greater Macon locations: MDA covers ALS as one of the 43 types of muscle debilitating conditions they cover.  MDA has a family support team whose job is to meet families at their time of diagnosis and assist during times of need throughout the process.

The office is located at 2310 Parklake Dr., Suite 375, Atlanta, GA 30345. Phone number is 770-621-9800. www.mda.org

 

ALSA GAALS Association Georgia Chapter: The ALS Association of Georgia has Patient Services staff members who are available to ALS patients and their families from the time of diagnosis. They will assess a patient’s needs, recommend equipment and help families plan for the future.

The ALS Association Georgia Chapter is located at 5881 Glenridge Dr. - Suite 200 - Atlanta, GA 30328. Phone number is (404) 636-9909. www.alsaga.org

 

ALS untangled ALS Untangled: ALSUntangled helps patients with amyotrophic lateral sclerosis (ALS) to review alternative and off-label ALS treatments.  www.alsuntangled.com

 

 

NEALSNEALS (Northeast ALS Consortium): The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease. To achieve that goal, NEALS functions as an academic research consortium, a contracted research organization, and a resource tool for ALS community. https://www.neals.org/

 

Goode FoundationThe Goode Foundation – Lodging Assistance: The mission of the Goode Foundation is to support, assist, and empower ALS patients and families, and inspire the pursuit of improved treatment and research toward a cure. Sometimes clinic appointments require an overnight stay for patients who live outside the metro Atlanta area. For those whose travel to Emory ALS Clinic is more than 1 ½ hours, the Goode Foundation will assist in reserving and covering the cost of an overnight stay at the Emory Conference Center on the night prior to the clinic appointment. CLICK HERE  to contact the foundation for assistance.

 

FACT Relief FundFACT Relief Foundation: FACT Relief Foundation’s goal is to help ease the burden and worry associated with concerns for the financial stability of the family as well as assist in planning for a family’s longer-term needs. They accomplish this by offering targeted financial support as well as long term planning and guidance for the benefit of these families with a demonstrated need. FACT Relief looks to help with more than just uninsured medical expenses, realizing that families experience the financial burden of day-to-day living expenses as well. http://www.factrelief.org/

 

Veterans ALS

 

Benefits and Resources for Military Veterans with ALS: CLICK HERE

 

 

 

ALS RegistryNational ALS Registry: The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. Registering and taking the surveys can help make a difference in the lives of those living with ALS today and for generations to come. Enroll now at: www.cdc.gov/als

 

 

Tools for Life: Tools for Life, Georgia's Assistive Technology Act Program, is dedicated to increasing access to and acquisition of assistive technology (AT) devices and services for Georgians of all ages and disabilities so they can live, learn, work and play independently and with greater freedom in communities of their choice. CLICK HERE

 

 

 

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