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Patient Resources

When you or a loved one is diagnosed with ALS, your first reaction is typically shock and fear. You may be overwhelmed and very emotional, and have many questions. You might not have ever known anyone with ALS and feel alone – but you are not alone! There is support available and it is important to engage early and seek support.  Resources available to help you through your journey with ALS are listed below and also available by item listed on the left side of this page.  

Contact us at the Emory ALS Center Office:
Phone: 404-778-3444     Fax: 404-778-3495
 

Patients can sign up for the email portal by calling 404-727-8820. Patients with speech problems, please have family call our office and leave their email address.

 

MDA_Logo_2c_pref_RGB_800h_0.jpg Muscular Dystrophy Association (MDA) – Greater Atlanta and Greater Macon locations: MDA covers ALS as one of the 43 types of muscle debilitating conditions they cover.  MDA has a family support team whose job is to meet families at their time of diagnosis and assist during times of need throughout the process.

The office is located at 2310 Parklake Dr., Suite 375, Atlanta, GA 30345. Phone number is 770-621-9800.

 

ALSA GAALS Association Georgia Chapter: The ALS Association of Georgia has Patient Services staff members who are available to ALS patients and their families from the time of diagnosis. They will assess a patient’s needs, recommend equipment and help families plan for the future. 

The ALS Association of Georgia programs and services include:

Medical Equipment Loan Program that provides mobility equipment and augmentative communication devices when insurance and other programs cannot fund needed items.

Support Groups for patients, family members, caregivers and friends.

ALS Care Grant Program that has some guidelines and requires an application.

Sally Panfel In-Home Care & Respite Program to provide in-home care to pALS and respite relief for their caregivers. There is a questionnaire and application process.

Paul B. Williams ALS Transportation Program to address the need of accessible van rentals, non-emergency transportation, van adaptations, and van vouchers.

All of the above program applications and additional information can be found the Georgia Chapter website.

The ALS Association Georgia Chapter is located at 5881 Glenridge Dr. - Suite 200 - Atlanta, GA 30328. Phone number is (404) 636-9909.

 

Goode Foundation

Goode Foundation Travel Assistance Program – The mission of the Goode Foundation is to support, assist, and empower ALS patients and families, and inspire the pursuit of improved treatment and research toward a cure. Sometimes clinic appointments require an overnight stay for patients who live far away from Atlanta. As ALS progresses, extra time to get the pALS up and dressed, into the car or van for travel, and into the ALS clinic building can turn that appointment into a 12+ hour day that is exhausting for the patient and caregiver.

The Goode Foundation Travel Assistance Program is for those Emory ALS Center patients who live outside the metro Atlanta area who would benefit from an overnight stay prior to a clinic appointment. The Goode Foundation has partnered with the Emory Conference Center Hotel to pay for the overnight stay prior to your appointment at the Emory ALS Clinic.

 

ALS untangled ALS Untangled: ALSUntangled helps patients with amyotrophic lateral sclerosis (ALS) to review alternative and off-label ALS treatments. 

 

 

NEALSNEALS (Northeast ALS Consortium): The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease. To achieve that goal, NEALS functions as an academic research consortium, a contracted research organization, and a resource tool for ALS community.

 

 

FACT Relief FundFACT Relief Foundation: FACT Relief Foundation’s goal is to help ease the burden and worry associated with concerns for the financial stability of the family as well as assist in planning for a family’s longer-term needs. They accomplish this by offering targeted financial support as well as long term planning and guidance for the benefit of these families with a demonstrated need. FACT Relief looks to help with more than just uninsured medical expenses, realizing that families experience the financial burden of day-to-day living expenses as well.

 

Veterans ALS

 

Benefits and Resources for Military Veterans with ALS

 

 

 

ALS RegistryNational ALS Registry: The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. Registering and taking the surveys can help make a difference in the lives of those living with ALS today and for generations to come. Enroll now.

 

 

 

 

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